Get all the latest news by following our new Twitter handle: @CKc_Foundation.
Get all the latest news by following our new Twitter handle: @CKc_Foundation.
No parent or family member wants to hear those three words. No More Options. No child deserves to die. No child deserves to be given up on because there is nothing more that can be done to save their life.
However, the reality of childhood cancer tells us otherwise. At least 250 children around the world die from cancer every day. These 250 families know the devastating reality of hearing #NoMoreOptions.
We believe that together we can change this reality. Funding pediatric cancer research isn’t just a nice thing to do… it is critically necessary to save the lives of children who need us to fight for them. We can’t fund research without your support. Research Is The Key.
The pain, the guilt, the suffering, the sadness that infiltrates the lives of the moms, dads, brothers, sisters, grandparents and all of those who have loved a child who has died from cancer is real and crippling. A few courageous families have allowed us to take a personal look into their pain. A pain experienced exponentially by those who were touched by one of the 90,000 children lost to cancer each year worldwide.
This September, we hope you take a few minutes to watch these videos and educate yourself and others about the critical need for funding pediatric cancer research. We can make a difference. Please join us in putting an end to #NoMoreOptions.
Sponsorships are rolling in for our 2nd Annual Gold Gala on April 1st! We would love to give recognition to the sponsors who have committed to helping us raise funds to eradicate pediatric cancer! We can't wait for April 1st! If you have not yet purchased your tickets, please visit our event web site to purchase your tickets online today:
EVOK Advertising Agency - https://www.evokad.com
Hackers for Hope - http://hackersforhope.org/index.html
Women's Care of FL - http://www.womenscarefl.com/find-a-care-group/central-florida-care-groups/ob-gyn-specialists/about-us
Processing Point, Ic. - http://processingpoint.com
McDonald Toole Wiggins, PA - http://www.mtwlegal.com
GEO-MED, LLC - http://geomedsdvo.com
Orlando Freightliner - http://www.orlandofreightliner.com
ABC Bus Companies - http://www.abc-companies.com
XL Soccer World Orlando - http://www.xlsoccerworldorlando.com
Xenia Hotels & Resorts - http://www.xeniareit.com
Zero Chaos - http://www.zerochaos.com
Bowen, Miclette & Britt Insurance - https://www.bmbinc.com
Travel Tabs - http://traveltab.com
Michael and Martha Brown
Elan Group - http://www.elan-group.com
Pentair Aquatic Systems - http://pentairaes.com
Hale, Hale & Jacobson - http://hhjlegal.com
Orange County Glass - http://www.orangecountyglassorlando.com
Liz McCausland, PA - http://www.lizlawfirm.com
Keiron Partners - http://www.keironpartners.com
Christopher Scott D'Angelo
Irwin Fritchie Urquhart & Moore LLC - http://www.irwinllc.com
Community Sponsors -
Ponall Law - http://www.ponalllaw.com
Littler Mendelson - https://www.littler.com
Mumma Bear Blog: Progress and Change
It's been a minute since I blogged. Frankly, and you all know I like to talk frankly, the new position of Executive Director and creating a new Board to support us has been very time consuming. I am coming up for air... but not for long. :-) I have some 15 out-of-state visits on the calendar this year alone. CKc is making waves. Not to brag on Michael and I, but truly to brag on our whole team. Our team is making waves. Our board, volunteers and our team. Little by little things are changing, and we won't stop.
What change and how?
Michael and I were invited by George Bodenheimer, the former CEO and President of ESPN, to speak at an event last night in Naples, FL, for the V Foundation for Cancer Research. The foundation was founded in 1993 by ESPN and legendary basketball coach Jim Valvano with one goal in mind: to achieve victory over cancer. Michael and I often take turns or tag team speaking engagements, but last night my sports-enthusiast husband stood tall alone, and spoke so perfectly. If you have not heard him speak before, his passion runs through his veins and the room was silent hanging on his every word.
After his speech, at least 20 people approached us saying our story moved them and that they NEVER KNEW the facts about pediatric cancer. Our promise at CKc is that we will not stop until everyone knows the TRUE facts of pediatric cancer and the horror it is. The underfunding! The adult therapies used on kids! The list is endless. It proves to Michael and I that CKc has much work to do to educate for change. Educating for change has been at the core of our mission since before CKc existed and we were just two parents talking about how awful our son was doing. It remains at the core today, and will continue do so, until everyone is educated… until there is change.
To further illustrate the encouragement we received for educating about pediatric cancer, George had asked us to bring to the event some copies of our book, "Thankful For The Fight”, and after Michael spoke, we had to go back to the car to get more books because we gave them all out! It really was so special to see people want to know more about pediatric cancer. It is fire in my belly!
The V Foundation is possibly the most well-known, adult cancer research foundation known in the U.S. A board filled with celebs and making tens of millions of dollars every single year. Thanks to George, Dick Vitale and Kristen and Buster Posey, pediatric cancer has become a huge priority to the foundation. So much so that the V Foundation just started an entire grant just for pediatric cancer called the John Saunders Research Grant for Pediatrics. How amazeballs is this? Plus, Cannon has been invited to Dick Vitale's event in May where he will stand proud with some other warriors and raise money for pediatric cancer research!
This, as many of you know, is not the first time, per our mission to educate for change, that a primarily adult-based cancer research foundation has looked to fund more pediatric cancer research in light of being educated about the lack of funding and archaic treatments.
Please know my husband spoke about his father who had fought lung cancer and has now passed, as well as being a father to a son who has battled cancer. This is NOT about saying kids are more important than adults… this is about saying they are AT LEAST EQUAL to adults! So, let's rethink how money for cancer research is distributed and let's make kids a priority, because without funding and new treatments, these kids are dying. Seven children a day in the U.S.! Seven are being buried today! That is NOT okay! Cancer is the number ONE killer of children by disease! Let's change that!
The V Foundation wants to discuss partnering on a pediatric cancer research project with CKc and we are excited to talk that through along with our friends Buster and Kristen Posey, who are huge supporters of the V Foundation.
Please, please, please buy your tickets for our CKc Gold Gala on April 1st in Orlando. Bagpipers! A butterfly release! Whisky and cigars for the men and the women - I don't mind the odd cigar myself! Fire pits! Lakeside venue! I promise it will be incredible! This year our REAL founder Master Cannonball Wiggins will be attending for a short period to show off his kilt! You’re welcome! ;-)
This is Michael. As we approach the close of 2016, there is so much to look back upon and be thankful. Cannonball Kids’ cancer Foundation funded, thanks to many of you who follow this page, four clinical trials with researchers in Georgia, Wisconsin and Michigan. In addition, we have been hard at work at the end of this year to raise $100,000 to fund a fifth trial in California at the beginning of 2017. We need your help to accomplish this goal. Please consider making an end of year donation to help give us the push we need to reach $100,000 and to help us save lives.
The researchers heading our trials are engaging other pediatric oncologists around the world to help them enroll children who have most regrettably been given no other options for continued treatment. And, so far, at least 33 children have been enrolled in these trials and someday the results may lead to better and more effective treatment for cancers found in children and quite possibly a cure.
We can’t do what we want to do for “our kids” with cancer without you. I have said this many times, but it bears repeating here at this time of year: since Cannon was diagnosed and Melissa and I received an education of how poorly children with cancer are treated by ineffective and antiquated treatments, I never go a day without thinking about the parents each day that will hear an oncologist tell them that their child has cancer, and worse, the parents that have woken and dressed that morning to go to the funeral and burial of their child devastatingly lost to cancer.
Cancer in children is wrong. It is unjust. It is unnecessary. CKc intends to do something about it and to make change through research. Funding innovative research. If you are considering making a charitable donation in these last days of 2016, we would be honored if you would consider CKc. And, gifts of appreciated stock, bonds or mutual funds are a great way to make a tax deductible donation because you will get a charitable deduction for the full market value of the stock or bond and avoid paying capital gains on the increase in the value of the securities.
Thank you all, again, for what CKc has become. Next year promises bigger and better and, most importantly, additional funding of more clinical trials in our quest to find better and specific treatments for children with cancer and to ultimately achieve the day when cancer does not exist in children.
We can do it, and we intend to.