Drum Roll Please....EXCITING NEWS!!!!
It is hard for me to type this without jumping up and down...
Are you ready for this?!?!
CKc now has legislative lobbyist representation right in Washington, DC!
What does that mean? It means pediatric cancer now has not just one but a team of legal legislative lobbyists who will be working on our behalf to make a change not only in funding research for pediatric cancer but awareness to the political members that can make a change.
With permission I can NOW announce that Venable LLP, a top-tier law firm, ranked in the top 20 in DC and top 100 in the USA has just approved CKc as their newest client. Venable LLP will be our eyes, ears and mouths as legislative lobbyist representatives right in DC on the Hill to members of Congress and the Senate. Their client list is incredible and the fact they are taking on this cause with us is just such a huge gift!!!
When I met with the team in DC I was, as I always am, very concerned about the financial side... I am British, after all. ;)
As some of you may know, legal fees can seriously eat up pediatric cancer foundation funds, especially in this area of the law where some attorneys charge $600 an hour. I don't and I didn't want that to happen...
This evening it has been approved at Venable LLP's committee level (hence the wait on my update) and for the first time in the firm's history, according to our lawyers' experience, they will take CKc, a legislative client, and pediatric cancer on as a pro bono client. What does that mean? It means they will DONATE their time to us. CKc will be having weekly conference calls (starting Tuesday) with the team in DC and we will strategize on the best ways to impact funding and awareness of the facts of pediatric cancer.
I am super excited about this, as you can probably tell. Many foundations spend million of dollars on this type of expertise and we have been given this incredibly incredibly kind and just amazeballs (yep, I still say it) gift!!!
Thank you for your patience and more updates are coming.
This is HUGE and a truly historic day for CKc but more than that for the cause. Watch out cancer: CKc doesn't play nice and we're just getting started.
Yesterday marked one year since Cannon received his life-saving stem cell infusion during transplant and it was, and I pray remains that way, the worst experience of our entire family's life. I have never seen pain in my life like I did during transplant! Cannon couldn't walk, his skin was burnt from the inside out after 108 hours of continuous chemo, he never ate for 7 weeks nor did he leave our isolated room. It was and continues to be the hell I never want to remember. But look at what we are achieving a year later!! Team CKc is kicking some serious cancer butt and we're in this for the long run! This is only the beginning!!!! Cannon was our inspiration to fight harder and we will never stop!
Today, some pictures of the boys at yet another pumpkin patch. It's becoming quite the habit with the Wiggins boys. What will I do when fall is over? Lol ;)
Written by one extremely excited Mumma-Bear .....
Written by Mumma-Bear
Cannonball Kids' cancer
Thankful For The Fight
156 Days No Evidence of Disease
No Relapse Ever