What does 28 days cancer free look like? ....
Well it sounds like this: Cannon continues to amaze us with his eating and trying EVER so hard to talk. He is getting stronger but still very weak ..but most importantly getting stronger.
We have had differing opinions on whether he should have hearing aids NOW or not and subsequently are looking to a third opinion. I know that if Cannon does need them he will make them cool and make sure everyone else that has them around him feels cool, too! He is just that kid! He is a lover.
Cannon starts medications again on Monday - I know they save his life and thus I refrain from complaining. They do change his mood a lot but I'm thankful he is here and thankful a change in mood is now noticeable due to his non-stop smiling... For months he was emotionless so perspective, Mumma-bear ;)
July 6th Cannon takes his last meds for the protocol and July 7th we begin scans for the week. Scanxiety is setting in already but I must stay strong and focus on today and not be fearful of tomorrow.
End of July we hope to go to Michigan for the trial chemo drug DFMO which he will be placed on for two years and consists of 8 pills a day. It's all in motion and we wait to hear back from them.
Keep the cancer away....
We do not want... nor does anyone want... to be in the relapse category.
Please continue to pray for my buddy PATRICK - he has scans today!!
Things at the Cannonball Kids' Cancer headquarters - how would I describe it....mmmm.... Crazy!!!!!
Thank you for all who applied for volunteering and anyone that wants to please go to our volunteer page:
Yes - you can apply from any State or Country.
We have reviewed hundreds of applications and continue to segment them into groups and advisory boards. If you haven't submitted one, get one in soon. Please be patient with us, we will be getting in touch within the next two weeks.
Michael and I are off to DC to educate ourselves and then use that to educate others. I am a little over excited about visiting the White House - that's pretty cool for a Scottish lassy.... But most of all I am just yearning to learn more and change things for these kids. That's my focus: education to eradicate kids cancer.... That's where I see myself within the Foundation (which is huge, by the way). A lobbyist? Perhaps my law degree will come into use after all ;)
I am so thankful for everyone that is making kids' cancer weaker as we TEAM CANNONBALL get BIGGER and stronger .... We are only an infant charity right now but before you know it .......
We are trying to transition the main Cannonball Kids' Cancer information and updates to our website now - a much easier resource for our time to compile packet information, funding, research, etc. All of which is being worked on really hard by the team... So I ask kindly and nudge you gently to start checking our website for information. If you all, sorry how do you Americans say it 'y'all' don't follow directions well (I get it, I'm that way ;)) then I won't nudge SO gently next time....
Cannon and I got some quality time 'just us' today (a complete rarity), it was amazing!!! Look at this guy go....
I continue to be
Thankful for the fight
Written by Mumma-Bear
Cannonball Kids' Cancer
Thankful For The Fight
28 Days Cancer Free
Cannon 28 days cancer free!!!