Childhood cancer Awareness (Action) Month - Day 15

This is Michael. This morning I can report that Cannon is feeling a bit better with a little more energy and with no fever. Melissa and I are really not sure what hit him, but he has not looked all that well in a few days, has had little appetite and has had a sore mouth and throat to the point that he was not swallowing and drooling from the sores in his mouth. Very strange and he was warm but did not have fever. He just doesn’t seem all the same with energy and his personality, although we got a little bit of it last night before his bedtime when he wanted to jump on the bed and wrestle with his dad a bit. We are still a bit concerned, but hoping today brings more appetite and more energy and he is up and out of whatever is dragging on him right now.

This morning I also have some incredible news to report. I received an email from Paula Christ at Goodyear, who tells me that it is confirmed that the Goodyear Blimps are now sporting a message for Children's cancer Awareness Month in September. Go to Goodyear’s Facebook page to see the video of the scrolling message that we were asked to provide, and see Goodyear shouting out for Cannonball Kids’ cancer! Fantastic news and so grateful on behalf of the kids! Thank you, Paula, Eddie, Doug and Scott at Goodyear. Go to:

https://www.facebook.com/GoodyearBlimp

I called CureSearch this morning to give them the good news that we asked that CureSearch be referenced in the blimp message. Melissa and I are big fans of CureSearch, as this is an organization working everyday to get to a cure for all children's cancers. We try to support CureSearch, St. Baldrick’s Foundation and Alex’s Lemonade Stand, among others, in their mission(s) to stop the suffering of kids and their families because so little is known about what causes cancer (in all its forms and types) in children.

So many times, Melissa and I are asked who we support or which organizations or charities do the job, or have the mission that we advocate. Today I thought I would highlight CureSearch and give you some information from their website. Go there and watch the video on their front webpage. 

http://www.curesearch.org/

Childhood cancer Awareness (Action) Fact of the Day:  The survivial rate for most forms of childhood cancer have stagnated (not increased) in the last 30 years, due primarily to gaps in crucial research funding.

Source:  BandofParents.org

CureSearch supports childhood cancer research at all stages along the research pipeline, from fellowships for Young Investigators, to game-changing support for research on the verge of becoming a new treatment, to clinical trials for children being treated today.

·     The Acceleration Initiative is a 3-year, $5 million project that addresses the most challenging barriers facing the field of children's cancer research. By funding medical research that confronts these barriers directly, we believe that we can make significant progress toward curing all children's cancers. The Acceleration Initiative utilizes a flexible and accelerated funding model to incentivize innovation in a field that is often stymied by federal funding shortages and sluggish progress from the laboratory to the patient. In conjunction with its Scientific Advisory Committee, CureSearch issued three "Grand Challenges" in 2013 and invited researchers to submit applications. Out of nearly 50 applicants, CureSearch chose three major research projects to support.

·     The CureSearch Symposium is an annual collaborative meeting that brings together top-level researchers and clinicians to address the challenges and advancements in the field of childhood cancer research. Working with the brightest scientific minds, CureSearch will pose key questions that challenge existing paradigms, invite multi-institutional and interdisciplinary collaboration, and push the field closer to a cure.

·     CureSearch's Young Investigator Program provides support for promising young scientists and clinicians conducting childhood cancer research in transformational science aimed at delivering the next generation of treatments. Currently, CureSearch supports 12 Young Investigators in research areas with high risk and low outcomes for children with cancer: relapsed ALL, AML, brain tumors, Ewing sarcoma, hepatoblastoma, Hodgkin disease, neuroblastoma, non-Hodgkin lymphoma, rhabdomyosarcoma, survivorship/late effects, adolescent and young adult cancer, and Wilms tumor.

CureSearch has funded clinical trial research, to ensure treatment for over 50,000 children with cancer. CureSearch provides grants to qualifying hospitals and research centers as part of its Clinical Trials Advancement Awards. These clinical trials are a part of the collaborative research that has dramatically advanced the cure rate of children's cancer. In 2014, the Awards will grant up to $1.5 million to these trials.

Please help Melissa and me and all the parents of kids with cancer, living and now in heaven, to raise awareness so that someday, someday cancer in children will not exist.  Saint Peregrine, JoeJoe, Eddie, Nicholas, Bella, Talia, Cole, Tommy, Addison, Abigail, Christopher, Jayson, Landon, Salvatore, Zoe, Brooke, Erin, Gabriella, Laney and all the angels and saints, please pray for Cannon, Patrick, Ava, Sabrina, Sophia, Andy, Calin, Parker, Sophie, Prestun, Oscar,  Ayven, Sebastian, Calvin, Ellen, Ella, Austin, Braden, Nora, Nate, Theo, Maggie, Jacob, Gage, Jace, Makayla, Angel and all those who suffer from cancer.

 

 

 

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