This is Michael. CureFest was held in Washington, DC over the weekend, and Melissa and Ashley will have a lot more to report about CKc's presence there and the progress that is being made in the movement to increase funding for research for the causes and a cure for children's forms of cancer. There is new healthcare legislation that will come to a vote in the next Congress that will include direct attention to pediatric cancer and there are changes afoot at the National Institute of Health (NIH) and the makeup and direction of the National cancer Institute (NCI). Yet, we still can't forget and must change our nation's priority of adult cancers to give at least equal attention to those cancers that strike our children. When less than 4 pennies of every dollar spent by the government for cancer research goes to children's forms of cancer, and all 12 major types of children's cancer have to share in that small amount, there is dire need and our work is just beginning.
Childhood cancer Awareness Fact: With a current U.S. population of 84 million children, and expectations that 1 in 285 children will be diagnosed with cancer before the age of 20, this means roughly 300,000 children will be diagnosed with cancer over the next two decades. On average the cost of treatment for childhood cancer is $500,000 per child (a very low estimate; Cannon's stem cell transplant alone cost nearly that much). Using these statistics, one could extrapolate that a goal of curing childhood cancer could save $7 billion per year, and this is probably a very conservative estimate. A $7 billion savings does not even consider savings that might be achieved by developing less harmful treatments for childhood cancer. Two-thirds of survivors of childhood cancer suffer life altering impacts of treatment, heart issues, hearing problems, cognitive issues, secondary cancers... the list is long and costly. In addition, studies show that 95% of childhood cancer survivors suffer serious health impacts before the age of 45, largely as a result of treatments to cure their childhood cancers.
Source: FourSquare Clobbers cancer.
FourSquare Clobbers cancer goes on to say, "We need a movement, we need people power to tell Congress that childhood cancer research should be a priority. People power is about politics and strategy – using various forces to create a movement, including the media that forces social change. In order to bring cures to kids, we need to exert our people power to force change. Please help create the movement, spread awareness about the realities of childhood cancer, use your voice to tell representatives constantly and continually that the current situation is unacceptable. Use your people power to demand that NIH follow the law to provide transparency about goals, objectives, how priorities are set, results anticipated and where childhood cancer fits in agency plans. Use your people power to help effect change that will give kids hope and cures."
CKc believes that private funding of research will ultimately be the key to curing cancer in children and relieving the suffering of children to archaic and antiquated treatments. However, we will never relieve the government of its responsibility to our most vulnerable population just because it has not done the right thing in the past or currently. Help us at Cannonball Kids' cancer by making a donation today at cannonballkidscancer.org. Your donation goes directly towards funding pediatric cancer research trials. Only research and development through trials and bench to bedside work will stop this madness. We believe we can do it. Thank you.