Great work by Guy Redford, CKc Board of Directors, who directed the fourth annual CKc charity golf tournament in Scotland.
Great article on immunotherapy trial which was the first-ever research trial CKc funded. CKc recently gave another $100,000 for the expansion of this successful trial. Great work by Drs. Ted Johnson and David Munn.
Mumma Bear Blog
This weekend, many of my family and friends posted this article saying how proud they were of me. I'm grateful for my amazeballs family - I'm seriously the luckiest Scottish lassy. BUT...
Would you like to know who I am REALLY proud of?
A national newspaper.
The Daily Record.
When was the last time you picked up a newspaper and saw images of a child battling cancer with blood coming from their nose?
A child battling cancer with arm restraints on?
A child battling cancer with tubes on his face?
I hate to be presumptuous but I am pretty sure the answer is "never".
You have, of course, seen bald children, smiling, happy, maybe holding a balloon, maybe a local celebrity.
Rarely do we see what I've seen: one of my closest friends walking behind the casket of her 5 month-old-daughter, Emmi Grace, after battling brain cancer. Or Trevor, whom my son and I adored, being laid to rest. I could write an entire book on what I've seen. I don't need people to see or feel or know everything about pediatric cancer - I really don't. But I do need people to know it's not all smiles and balloons... that it's pain, that it's death, that it's hospice for three year olds like my friend Julia, who was laid to rest at age 3.
Why do I need or want people to know the truth?
Because my theory is if people knew what pediatric cancer REALLY looked like they would try to change it.
That's been mostly my experience as we started our foundation. By the end of this year, CKc will have raised $1 million dollars for pediatric cancer research in three years. People ask why we show these images. We show them for change. Our mission statement has three words in it that I hear in my mind every single day: "educate for change".
I try to do that as much as I possibly can. I believe education can change the outcome for these kids. I believe in my heart and my brain that CKc can help be a part of that change.
I'm grateful when a national newspaper interviews me and says "In over twenty years in the business I've never seen images like this." And then shares those images with the country. That's brave! That's heroic to me!
More times than not, when I do interviews I tell the reality of pediatric cancer and later send images of Cannon and what that looked like. You know the real images - the surgery pics, hand restraints, blood from his nose pics... more often than not those are not selected.
Thank you for showing the REAL images!
Thank you for showing the reality of pediatric cancer!
I've spent the last two weeks representing CKc in Scotland and the "accessibility" pillar in our mission statement. I've been able to be part of a movement in Scotland to show the reality of pediatric cancer and to use funds generated from a ladies' luncheon where I spoke, a public appeal on national TV where I was interviewed and a national newspaper interview to FUND research for an early phase trials program. The first of its kind in the country at the best hospital in the country, Glasgow Royal Children's Hospital. Our CKc team, including Guy Redford (Director of Golf at Loch Lomond), Annabel Redford (my fierce Mumma bear), Michael Wiggins, my amazeballs husband - have all worked with the hospital for around 18 months to collaborate with how CKc could help with research at the hospital. Seeing the fruits of our labor has been quite emotional but in the best possible way. Making our CKc board proud of how we carry out our mission is frankly really important to me and I believe they are proud. If not, you may find a new Executive Director at CKc - but hopefully you're still stuck with me for a while. I will let you all know how my annual review goes 😁😁😁!
I've worked with many hospitals around the US and Kirsten Sinclair, Shona Cardle and Dr. Gibson (just nominated by the Queen of England for an Order of the British Empire) are among the best. Their hard work and constant collaboration with CKc on how we could be a part of this was and is greatly appreciated! This is just the start of changing pediatric cancer in Europe and I'm thankful CKc can help with the movement.
In my interview I was asked "What is your hope with all of this, with what you do at CKc?"
My response: "That parents and kids are never told there are no more options, that it's time for hospice. That a child never dies of pediatric cancer. That the scars of pediatric cancer that are left behind diminish."
All of the above are doable!!
They take funding!
They take GOOD, in fact, GREAT research.
But the best part of this?
It's all doable!!
And guess what?
CKc is doing it!!
ESPN announced details for the 10th annual Jimmy V Week for Cancer Research, to be held November 30 through December 9 across ESPN platforms. Programming highlights include sharing survivors' stories and breakthroughs in cancer research. We are excited to tell you that Dick Vitale will highlight Cannon and share his story during Mr. Vitale's taped speech, which will air on Tuesday evening, December 6th, during halftime of the second game between Duke and Florida on ESPN. The game begins at 9:30 pm EST. We hope you have an opportunity to tune in! Thank you, Mr. Vitale and the Jimmy V Foundation, for sharing Cannon's story and for your genuine interest. We are so thankful for your support and for all of your incredible work to raise awareness and funds for cancer research!
Thank you, George Diaz, for writing this great piece and for your continued support of our mission!
CKc would like to thank The Soda Fountain in College Park, FL, for hosting our first spirit event! Thank you, also, to everyone who came out and supported us by making a purchase to help raise funds for pediatric cancer research! Check out the news coverage of the event in the College Park Community Paper!
The new June edition of the College Park Community Paper featured a wonderful article about the passion that drives CKc and the success of our recent inaugural Gold Gala. Thank you, Martina and the College Park Community Paper, for this fantastic article! We greatly appreciate the support of our hometown newspaper!! Read the article by clicking on the link below:
Thank you to Ybeth Bruzual and News Channel 13 for featuring the CKc Gold Gala on a recent segment! We greatly appreciate your support!!
Thank you to the College Park Community Paper for your support of CKc and for providing a great article on what's going on with our foundation.
Click this link to read the article and find out how you can help CKc.
Thank you to our friends at Orlando Magazine for highlighting Cannonball Kids' cancer and helping us raise awareness for childhood cancer! We are so grateful for your support! #Orlandomagazine #cannonballcancer
Georgia Regents University (GRU) in Augusta, Ga., highlights news about CKc's first research grant to help fund a pediatric immunotherapy clinical trial at the GRU Cancer Center. The trial, led by Dr. Theodore Johnson, is the first immunotherapy trial focused on pediatric brain cancer. Click on the link to read the full article.
Article originally posted June 11, 2014 on orlandosentinel.com:
WHNT News in Madison County, Alabama, reports the Sparkman Senators faced the Bob Jones Patriots in mid-April. But it was not any ordinary soccer match.
While on the field there was a rivalry, on the sidelines there was a common cause. Sparkman High School hosted “Kicking 4 the Cure” – an event aimed at raising awareness and funds for pediatric cancer research.
Check out what these kids did to raise money and awareness in their hometown. Thank you Sparkman High School and WHNT.
Melissa Wiggins recently had the opportunity to sit down with Central Florida News 13 anchor Ybeth Bruzual to discuss the good Cannonball Kids' cancer Card Club can do by creating smiles while raising money for pediatric cancer research. Thank you, Ybeth and News 13, for helping us spread the word! Find out how you can help by watching the link below.
Thank you, Brian Shields and WFTV, for featuring the Cannonball Kids cancer Card Club in a recent spot highlighting how families can help raise money for childhood cancer research and education while participating in a fun Valentine activity.